|
Click on
this face,
get to their
place!
|
Name
Date of Birth
|
Parents
Email address
Location
|
|
 |
Courtney Jennerjohn
February '93 |
Dawn and John Jennerjohn
dawn_j_nh@yahoo.com
Bedford, New Hampshire USA |
|
 |
A. J. Sanchez
June '92 |
Julie and Bob Sanchez
juliesanchez27@msn.com
Shoreline, Washington USA |
|
 |
Lizzie Dixon
1984 - 9/26/98 |
Margaret and John Dixon
JonDxn@aol.com
Oswego, New York USA |
|
 |
Michelle Clark
1990 |
Christine & Jack Clark
apertnet@ix.netcom.com
Fair Oaks, California USA |
|
 |
Jeany Pak
June '71 |
Jeany Pak
shuijeanpak@yahoo.com
Wendy Pak
Wendy_Pak@ridleycollege.com
Thunder Bay, Ontario, Canada |
|
 |
Rosemarie Starr |
Rosemarie and George Starr
dakotasport@fuse.net
daystar@iglou.com
Covington, Kentucky USA |
|
 |
Nicole Contrino
November '93 |
Frank and Annette Contrino
contrino2072@gmail.com
Buffalo, New York USA |
|
 |
Vivi Zhang
August '95 |
Qing Gong and
Xiaonong Zhang
gongqi@sch.ge.com
Albany, New York USA |
|
 |
Mar Mar Iucker
1994 |
Joana Magno, MD, and John Iucker
magnomd@aloha.net
Honolulu, Hawaii USA |
|
 |
Shawn Allison
June 1994 |
Laura and Michael Allison
gousa@gousainc.com
Kansas City, Missouri USA |
|
 |
Kajsa Dohrman
December '89 |
Annalena Dohrman and Jan Gunnarsson
mg11509@gaia.swipnet.se
Sundsvall, Sweden |
|
|
Jay McGee
1977 |
Danelle and Mike McGee
No email at this time
Cresco, Iowa USA |
|
 |
Patrick Bruns
May '83 |
Beth & Dan Bruns
102051.347@CompuServe.com
St. Louis, Missouri USA |
|
 |
Alex Irvin
January '90 |
Amy & Dudley Irvin
airvin@columbus.rr.com
Westerville, Ohio USA |
|
 |
Krista Horning
July 21, 1987 |
Bob Horning
Horning_Bob@htc.honeywell.com
Savage, Minnesota USA |
|
 |
Meredith Leonard
1976 |
Grace Leonard
Tewksbury, Massachusetts USA |
|
 |
Daryl Graham
February '96 |
Denise & Chad Graham
onemoretime30@hotmail.com
Shelbyville, Tennessee USA |
|
|
Kyle Egan
1979 |
Debbi & Mike Egan
debbiegan@aol.com |
|
 |
Joao Byington
1981 |
Olivia Byington &
Edgar Duvivier
evoe@Enterprise.cybernet.com.br
Rio de Janeiro, Brasil |
|
 |
Cecilia Wallenius
cecilia.wallenius@vattnet.com
February '82 |
Lisa & Yngve Wallenius
yngwa@nykoping.nu
Nyköping, Sweden
http://www.apert.se |
|
|
Casey Deakins
1987 |
Sandy & Tony Deakins
TDeakins1@aol.com
Orlando, Florida USA |
|
|
Adrienne Rus
January '95 |
Mary J. & Allen Rus
RusM@osc.army.mil
Eldridge, Iowa USA |
|
|
Roddy Meeks
August '88 |
Fayrene Meeks
fmeeksau@isd.saginaw.k12.mi.us
Saginaw, Michigan USA |
|
 |
Jake Bailey
May '96 |
Laurie & Kevin Bailey
jkb@elpaso.net
El Paso, Illinois USA |
|
 |
Amy Esler
February '91 |
Ann Luxton & Howard Esler
howrdnan@ihug.co.nz
Auckland, New Zealand |
|
 |
Cian Gavin
June '96 |
Carol & Simon Gavin
simongavin@eircom.net
Sallins, Ireland |
|
 |
Jackie Lynn
Wittenburg |
Mark & Kathy Wittenburg
Kathy_Wittenburg@tempe.gov
Mesa, Arizona USA |
|
|
B. J. Harmon |
Mr. & Mrs. D. M. Harmon
San Antonio, Texas USA |
|
 |
Andrea Gartner |
medbillerchic@earthlink.net
Cape Coral, Florida USA |
|
 |
Brenna Johnston
aka Sugar Plum
May 14, 1996
Crouzon's Syndrome |
Robyn Johnston
robyn@ordata.com
Eugene, Oregon USA |
|
 |
Ceci Kilner
October 1994 -
March 19, 1998 |
Chris and Reggie Kilner
kilner@worldnet.att.net
ckilner@viennapat.com
Alexandria, Virginia USA |
|
|
Jonathan Siebert
December 6, 1996 |
George & Brenda Siebert
GSieb91515@aol.com |
|
 |
Nicolas Graves
November 26, 1991 |
Tim & Carol Graves
gravesfam5@bluemarble.net
Bloomfield, Indiana USA |
|
 |
Lindsay MacDonald
April 2, 1992 |
Robin MacDonald
rmacd@rogers.com
Paris, Ontario
Canada |
|
 |
Laurent Sents
March 30, 1983
Kniest's Syndrome |
philippe.sents@pi.be
Maggy.Delbouille@CockerillSambre.be
http://www.multimania.com/kniest/
|
|
 |
Sarah LeCara
April 4, 1997 |
Tamara Pedlow (LeCara)
tpedlow@houston.rr.com
Houston, Texas USA |
|
 |
Sarah Elizabeth Yenney
1992 |
|
|
 |
Martha Palacio
January 12, 1996 |
José Palacio and Laura Pulido
laura.pulido@cshs.org
Los Angeles, California USA |
|
 |
Roxanne Chan
November 9, 1988 |
Joseph and Rose Chan
jchan7@comcast.net
LaMirada, California USA |
|
 |
Emily Krebs |
Brian & Janine Krebs
yonstein@aol.com
Long Island, New York USA |
|
 |
Jordan Graham |
Jennifer & Joe Graham
joeandjennifergraham@yahoo.com
Columbia, Missouri USA |
|
 |
Billy Foster |
Karen Foster
1335 Sanderson Avenue
Scranton, Pennsylvania USA 18509
foster@icontech.com |
|
 |
Jake Niemi |
Steve & Elizabeth Niemi
sniemi1@aol.com
Scottsdale, Arizona USA |
|
 |
Nick Amerman |
Bill & Judy Amerman
Monroe, Michigan USA
jamerman1955@charter.net |
|
 |
Thomas "Seth"
Jefferson |
Dori & Rick Jefferson
83 Pine Lane
Carbondale, Illinois USA
djeff@midwest.net |
|
 |
Nicole Miller |
Jack & Raquel Miller
Sharpsburg, Georgia USA
jnrmiller@comcast.net |
|
 |
Quentin Zaengle
March 1, 1993 |
Joseph and Anne Zaengle
Anne.Zaengle@comcast.net
North Wales, Pennsylvania USA |
|
|
Michael Kuras |
Mark Kuras
kurasmp@bellatlantic.net |
|
 |
Zoey Mathis
January 18, 1997 |
Christina Mathis
zoetias_mom@sbcglobal.net
San Antonio, Texas USA |
|
 |
Blake Scofield
April 15, 1994
Crouzon's Syndrome |
Everette & Gaylann Hicks
(Grandparents) |
|
 |
Carlee Williams
June 4, 1998 |
Cristy & Clyde Williams
carleesmom98@aol.com
Orange Park, Florida USA |
|
 |
Jasmyn Boczkowski
cowgirl629@hotmail.com
June 29, 1988 |
Patricia Smith
res0v546@verizon.net
San Bernadino, California USA |
|
 |
Kayla Smith |
Mark Smith
markandmarinasmith@charter.net
Warren, Pennsylvania USA
Michele Smith
rednewbie0605@yahoo.com |
|
 |
Liz Saylan |
Sapphire_Blue31@hotmail.com
Roswell. Georgia USA |
|
 |
Carmen Rae Hill |
Mike and Robin Hill
carmenrae@prodigy.net
Newnan, Georgia USA |
|
 |
Sean Avdovich
August 5, 1987 -
May 13, 2001 |
Carleton Place, Ontario, Canada |
|
 |
Paige MacDonald |
Sheila and Tom MacDonald
SMacdo1030@aol.com
Melrose, Massachusetts USA |
|
 |
Kelly Spadini
October 10, 1981 |
kspadini1010@yahoo.com
Roseville, California USA |
|
 |
Maxine Reed |
rreed3@pacbell.net
Modesto, California USA |
|
 |
Miles Hubbard |
Jason & Victoria Hubbard
hubbardjason@hotmail.com
England, UK |
|
 |
Saige Blotske
November 1, 1998 |
Trevor and April Blotske
tblotske@rof.net
Carbondale, Colorado USA |
|
 |
Lisa Picht
July 29, 1989 |
Deb Picht
rldpicht@starpoint.net
Marshall, Minnesota USA |
|
 |
Samantha Guyette
November 11, 1998
Samantha's Summer Adventures |
Lisa and Richard Guyette
lam1126@aol.com
Camarillo, California USA |
|
 |
Courtney Holt
June 3, 1998 |
Tim and Mechelle Holt
mholt26@aol.com
Hendersonville, North Carolina USA |
|
|
Shellie Bradley |
Ryan and Martha Bradley
bradleymac5@bex.net
Toledo, Ohio USA |
|
 |
Mieke Maartense
February 26, 1984 |
jmmaartense@zeelandnet.nl
's-Heerenhoek, Holland |
|
 |
Kevin Lee
December 7, 1973 |
NJ_Benny@yahoo.com
Hampton, New Jersey, USA |
|
 |
Jade Flynn-Hurley
April 15, 1998 |
Imelda Flynn and Dermot Hurley
irishapert@yahoo.com
Cork, Ireland |
|
 |
Nicholas Waldhauer
November 26, 1994 |
Shannon Waldhauer
losmar@bellsouth.net
Savannah, Georgia, USA |
|
 |
Susanna Immonen |
eero.immonen@pp.inet.fi
Finland |
|
 |
Ashleigh Hamzsak |
Carol Hamzsak
cazza28760@aapt.net.au
Victoria, Australia |
|
 |
Susie Lower |
drsuz@peoplepc.com
Iowa City, Iowa, USA |
|
 |
Aryaman Singh
July 27, 1999 |
Lt. Commander Arjun Rana and
Mrs. Anju Rana
arjun_rana@hotmail.com
Bombay-Colaba, India |
|
 |
Mason Pittman
February 9, 1999 |
Karin Meadows
karinmeadows@hotmail.com
Denver, Colorado, USA
|
|
 |
Dannyellee Schafer |
Kathy Sparks
Sparks884@cs.com |
|
 |
Joshua Benson Lemon |
Pete Lemon |
|
 |
Peach
tessier facial cleft |
baconsmith@shaw.ca |
|
 |
Maile Ogata
October 1999 |
Ernest & Cindy Ogata
pawsiewawsie@aol.com
Honolulu, Hawaii USA |
|
 |
Mollie Anne Pedigo
March 23, 1994 |
The Pedigos
email and address withheld by request |
|
 |
Jenny Brown
November 11, 1966 |
No email address at this time
Savannah, Georgia USA |
|
|
Maggie Doherty |
Steve and Claire Doherty
srdohert@mpx.com.au
Tamworth, Australia |
|
 |
Morgan McGahan |
Lisa & Bill McGahan
mcgahanfamily@comcast.net
Short Hills, New Jersey USA |
|
 |
Todd "TJ" Johnsen
May 22, 1980 |
Dan and Amy Johnsen
ajmoon@opexonline.com
Sandwich, Illinois USA |
|
 |
Debbie Drop |
tvee428@aol.com |
|
|
Shayne Stillar
1966 |
spsbike@hotmail.com
International Falls, Minnesota USA |
|
 |
Annie Sky& Ellie Star
February 20, 1993 |
Melody Sky |
|
 |
Marina Isaacs
August 29, 2000 |
Maria and Forrest Isaacs
sevilla777@cox.net
Tucson, Arizona USA |
|
 |
Moisé Cunha
April 10, 1998
Moisés Page in Brazil |
Rosângela and Joăo Carlos Cunha
moisesapert@ig.com.br
rdgcunha@bol.com.br
Rio de Janeiro, Brasil |
|
 |
Cheong Kai Lin
January 17, 1997 |
May Thien & Cheong
maycsc@mbox3.singnet.com.sg
Singapore |
|
 |
Chris & Tony Sapp
March 11, 1988 |
Patty Sapp
menasgram@aol.com
West Palm Beach, Florida USA |
|
 |
Oscar Ocańa
April 15, 2000 -
December 9, 2005 |
Rosa María and Enrique Ocańa
rabaco@prodigy.net.mx
cocodeagua@hotmail.com
Querétaro Qro, México |
|
 |
Doneen Key |
doneenk@yahoo.com
Madison, North Carolina USA |
|
 |
Matthew Whitten
February 6, 2001 |
Cheryl and David Whitten
Mama24Cheryl@aol.com
Mercedes, Texas, USA |
|
 |
Andrew Hartley
April 30, 1998 |
Rich & Karen Hartley
rich.hartley@yoh.com
Collegeville, Pennsylvania USA |
|
 |
Eric Dudley
December 30, 1993 |
David and Sandy Dudley sdudley@qwest.net
Littleton, Colorado USA |
|
 |
Anna Baker
April 1, 2000
Pfeiffer syndrome |
Tammy Baker
no email at this time
Paradise, California USA |
|
 |
Preben Wilsgĺrd |
Lisa Wilsgĺrd
wilsga@online.no
Norway |
|
 |
Maria Elena Servin
June 2, 1999 -
July 13, 2001 |
A
memorial page by Lisa Guyette |
|
 |
Samantha Blythe
November 5, 1980 |
GroovyWheeler@comcast.net
Philomath, Oregon USA |
|
 |
Brooklyn Nicholl
December 23, 1997 |
Travis and Julianna Nicholl
jaynicholl@charter.net
Fort Worth, Texas USA |
|
 |
Frans Wallenberg
1963 |
f.frasse@bredband.net
Jakobsberg, Sweden |
|
 |
Freddie Casavant
February 5, 1959 -
September 22, 1972 |
Nora Jacobs
noraj@sasktel.net
Saskatoon, Saskatchewan, Canada |
|
 |
Sabrina Robineau
April 9, 1989
Pfeiffer syndrome
sabrinarobineau@hotmail.com |
Jo-Anne Perras
joanneperras@hotmail.com
Gatineau, Quebec Canada |
|
 |
Brodie Bullock
June 18, 2001 -
January 20, 2004
Pfeiffer syndrome
|
Sharon Bullock
sharonbullock@msn.com
Cincinnati, Ohio USA |
|
 |
Palko Kočárik |
Peter and Zuzana Kočárik
kocarikp@marta.sk
Slovakia |
|
 |
Raymond Gilbreath
July 7, 1992 |
Ray and Michelle Gilbreath
raymichgil@msn.com
Olympia, Washington USA |
|
 |
Henry Morgan Johnson
June 15, 2002 |
Rachel and T.J. Johnson
Turlock, California USA |
|
 |
Marcus Cantu |
Alma Cantu
cantual@hotmail.com
Dallas, Texas USA |
|
 |
Tiril and Veslemřy Taule |
Morgan and Lise Taule
morg-tau@online.no
Norway |
|
 |
La'Jada Colon-Howard
February 9, 1997 |
Thomas and Karen Colon-Howard
takeesha@pmcol.com
Pageland, South Carolina USA |
|
 |
Paden Jolley |
Jeff and Jolene Jolley
yeehaw1475@yahoo.com
Tooele, Utah USA |
|
 |
Robert Kale
May 30, 2001 |
Debbie and Brian Kale
debbie at ekale dot com
Leesburg, Virginia USA |
|
 |
Emma Wood |
|
|
 |
Hannah Donnelly
February 14, 2001 |
Pearl & Michael Donnelly
pmhdonnelly47@eircom.net
Ireland |
|
 |
Callie Hanson
September 21, 2002 |
Randy & Cari Hanson
calliejohanson@insightbb.com
Wyanet, Illinois USA |
|
 |
Evan Milburn
June 1, 1996 |
Marianne Camous
camous@earthlink.net
San Carlos, California USA |
|
 |
Dan Alliot |
SirDan386@wmconnect.com
Florida, USA |
|
 |
Kyle Thornton
October 8, 2002
Crouzon Syndrome |
Len & Amy
Thornton len@lenthornton.com
amy@amythornton.com
Newfane, New York, USA |
|
 |
Jayden Micah Hooker
October 29, 1999 - January 13, 2003 |
Mesha March
(Aunt)
ahsem@earthlink.net
Farmington, New Mexico USA |
|
 |
Mark Dubas
January 17, 1964 |
murphy@plattevalley.net
Columbus, Nebraska USA |
|
 |
Dustin Wright
October 28, 2002 |
Rob & Toni Wright
noreenmccarron@shaw.ca
Victoria, British Columbia, Canada |
|
 |
Sarahi Silva
February 9, 2000 |
Jessica and Pedro Silva
jessicaisilva@hotmail.com
Houston, Texas USA |
|
 |
Seth Swihart |
Stacy and Mitch Swihart
mythreekids@neo.rr.com
Canton, Ohio USA |
|
 |
Charlene Walker
January 4, 1973 |
simba001@gbronline.com
Albuquerque, New Mexico USA |
|
 |
Kaylee Santiago
May 4, 2000 |
Tonya Thorpe
gopatstanya@aol.com
Pittsburgh, Pennsylvania USA |
|
 |
Rena Powitz
October 4, 2001 |
David and Tzilla Powitz
zilladavid@yahoo.com
Far Rockaway, New York USA |
|
 |
Katey Spears
August 27, 1995 |
Jennifer and Billy Spears
jennspears1@aol.com
Clermont, Florida USA |
|
 |
MacKenzie Weber-Silva
November 17, 1999
pfeiffer syndrome
http://www.pfeiffers.itgo.com |
Danielle Silva
Backyardiganmom@yahoo.com
Herlong, California USA |
|
 |
Darren Potter
February 27, 2002
EEC Syndrome |
Dave and Cat Potter
catherine.potter@verizon.net
Hickam AFB, Hawaii USA |
|
 |
David Banner
October 8, 1946 |
dbanner@techline.com
Cosmopolis, Washington USA |
|
 |
Shirley Barnett
June 9, 1993 |
Alice and Bill Barnett
BBarn60368@aol.com
Lake Mary, Florida USA |
|
 |
Shara Flores
May 17, 2001 |
Bernard and Heather Flores
thefloresfam@sbcglobal.net
Oroville, California USA |
|
 |
Shyan JiaLi Stewart
June 23, 2003 |
Dennis and Rebecca Stewart
rstewart246@charter.net
Scottsboro, Alabama USA |
|
 |
Ashanti Kristina
April 1, 2003 |
Barry and LaQuinta |
|
 |
Lillian
March 18, 2003 |
John and Jasmine |
|
 |
Olivia Marie Sanborn
December 23, 2002
Pfeiffer syndrome |
Mark and Laurel Sanborn
Laurelsanborn@cs.com
Richmond, Vermont USA |
|
 |
Avery Murden
July 31, 2001 |
Richard & Andrea Murden
mail@murdenfamily.com
Chesapeake, Virginia USA |
|
 |
Michelle Robertson
September 5, 1980 |
keleahsmygirl@hotmail.com
Franklin, Wisconsin USA |
|
 |
Letícia Figueiredo
July 5, 1996 |
Celso & Débora Figueiredo
apertbrasil@directnet.com.br
Săo
José dos Campos, Brasil |
|
 |
Ava Marie Beeler
February 13, 2003
Craniosynostosis with cloverleaf |
Malcolm and Laura Beeler
lmabeeler@comcast.net
Portland, Connecticut USA
Beeler Family Website |
|
 |
Ryan Craig
September 1, 2000 |
Shane Craig and Julie Blakey
julieblakey1980@yahoo.com
Vine Grove, Kentucky USA |
|
 |
Alex Rodriguez
1979 |
alxalx21@netscape.net
Pembroke Pines, Florida USA |
|
 |
Jessica and Ashley Bock
(Ashley has Apert)
June 29, 2004 |
Mike and Lisa Bock
lmichlik@sbcglobal.net
Houston, Texas USA |
|
 |
Dave Johnson
November 30, 1938 |
Dorothy Hunt (Dave's sister)
dotandbill@shaw.ca
Sault Ste Marie, Ontario Canada |
|
 |
Antonio Estrada
July 12, 2003 |
Antonio and Hope Estrada
hopee78210@yahoo.com
San Antonio, Texas USA |
|
 |
Emma Freimark
June 3, 2000 |
Kym Freimark
kymmyf@yahoo.com
Portland, Oregon USA |
|
 |
Ashley Marie Vella-Zarb
May 13, 2003
Pfeiffer syndrome |
Annette Vella-Zarb
annette@barcroft.com
Sarnia, Ontario Canada |
|
 |
Trey Shaw
July 2, 1998 |
Ross Shaw
sjshaws@earthlink.net
San Jose, California USA
|
|
 |
Evan Meder
June 13, 2004 |
Margaret and Randy Meder
mmeder@earthlink.net
Raleigh, North Carolina USA |
|
 |
Sam Murphy
December 29, 1997 |
Bill and Angie Murphy
coloradomurpheys@adelphia.net
Colorado Springs, Colorado USA |
|
 |
Ashlee Abramson |
superashlee365@hotmail.com
New Westminster, British Columbia
Canada |
|
 |
Luciano Cervera
June 22, 2004 |
Victor Cervera
luciano_c_v@yahoo.es
Peru |
|
 |
Molly Egan
December 6, 2002 |
Patrick and Pattie Egan
pategans@yahoo.com
Sacramento, California USA |
|
 |
Marco Garcia
July 21, 1981 |
Mormonkiko@hotmail.com
Brownsville, Texas USA |
|
 |
Bryson Hooper
September 2, 1992
Pfeiffer syndrome |
Bill & Melissa Hooper
mshooper@msn.com
Lewisville, North Carolina, USA |
|
 |
Hunter Moss
November 10, 1999 |
Kristin Moss
kristin@wmtel.net
Webster City, Iowa USA |
|
 |
Jacob Leatham
August 26, 2004 - December 20, 2004 |
Kathy La Plante (Grandmother)
culnana924@aol.com
Worcester, Massachusetts USA |
|
 |
John Moulton
1945 |
johnmoultonwgo@comcast.net
Kittery, Maine USA |
|
 |
Julia vonTauffkirchen
May 22, 2004 -
February 12, 2005 |
Elizabeth and Erik vonTauffkirchen
evontauffkirchen@yahoo.com
Bayfield, Colorado USA |
|
 |
Kris Contreras
July 2, 1983 |
basketballblue2@yahoo.com
Deer Park, Texas USA |
|
 |
Brisa Dougan
April 25, 2005 |
Don and
Melissa Dougan
HTown5933@aol.com
Midlothian, Texas USA
|
|
 |
Natalie James
May 2004 |
Paul & Chynel James
pc_james@xtra.co.nz|
apert@apert.org.nz
Auckland, New Zealand |
|
 |
Samual Lea
July 4, 1999 |
Tina Lea
tinalea@xtra.co.nz
Napier, New Zealand |
|
 |
Brittany Balentine |
Angela Balentine
abalentine2664@charter.net
Huntington, Tennessee USA |
|
 |
Mathias Erdman
May 14, 2003 |
Jamie Kinney
jamiesk29@hotmail.com
Quincy, Washington USA |
|
 |
Fiamma Izzo
September 16, 2004 -
January 22, 2005
Pfeiffer Syndrome |
Antonio Izzo and Stefania
Morrone
carciofo65@alice.it
Naples, Italy |
|
 |
Brooke Bell
December 22, 1996 |
Steve and Stacy Bell
scrapbratt@gmail.com
Severn, Maryland USA |
|
 |
Chase Bonner |
Kathy Bonner (Grandmother)
kathy48609@yahoo.com
Saginaw, Michigan USA |
|
 |
Zachary Piercefield
July 22, 2005 |
Brady and Rachel
Piercefield
bpiercefield@yahoo.com
Martinsville, Indiana USA |
|
 |
Isaiah Buchanon
January 11, 2005 |
Timmy and Nicki Buchanon
nicki@logantele.com
Kentucky, USA |
|
 |
Aric Huber
July 14, 1994 |
|
|
 |
Mackenzie Sheets
November 16, 2005
Mackenzie's Caringbridge Page |
Kacie Craig and Kenneth
Sheets
mackenzie0100@yahoo.com
Johnson City, Tennessee USA |
|
 |
Jack Smith
May 27, 2005 |
David and Marie Smith
empwrn@bellsouth.net
Birmingham, Alabama, USA |
|
 |
Florian Oettle
November 8, 2003 |
Michael and Susanne Oettle
michaeloettle@gmx.de
Ravensburg, Germany |
|
 |
Josie Elizabeth Dowd
February 3, 2006
Josie's
Caringbridge Page
|
Mark and Kellie Dowd
craftyk@bigwaterbass.com
Westland, Michigan USA |
|
 |
Angel Toribio
October 8, 2005 |
Leopoldo and Eva Leah
Toribio
leopoldotoribio@yahoo.com
Cebu City, Philippines |
|
 |
Haylee Clark
July 11, 2005 |
Eric and Lita Clark
ericandlita@gmail.com
Lebanon, Ohio USA |
|
 |
Dustin Villarreal
December 1, 1990
patrioticdustin@yahoo.com |
Dee Ann and Dennis Villarreal
dusden2000@yahoo.com
Olathe, Kansas USA |
|
 |
Dominic Rossi
December 7, 2005 |
Jim and Kelly
Rossi
Dorothy Akin (Great Aunt)
takin8@msn.com
Depew, New York USA |
|
 |
Shanti Gaoiran
February 17, 2004 |
Rhoda Ortega
(cousin)
rhoda_gaea_jane@yahoo.com
Philippines |
|
 |
Logan Wise
March 24, 1990 |
Ann Wise
amwise@comcast.net
Camp Hill, Pennsylvania USA |
|
 |
Dayan Haddad
July 24, 2004 |
Marco and Yessika Haddad
haddadmarco@hotmail.com
Tecate, Baja California. México |
|
 |
Kinze Johnson
March 9, 2005 |
Stacy and Jeff Johnson
ladyflower1@yahoo.com
Shabbona, Illinois USA |
|
 |
Max Abel
May 5, 2005 |
Beth and Jeffrey Abel
bka_jas@yahoo.com
Houston, Texas USA |
|
 |
Josh Perry |
cigarjosh89@yahoo.com
Sterling Heights, Michigan USA |
|
 |
Sayhana Naranjo Garcia
March 6, 2000 |
Sandra Garcia Osorio y
Jorge Ramirez
sayhanan@telecom.com.co
Colombia, South America |
|
 |
Camila Pagán-Torres
October 29, 2005 |
Jannette M.
Torres-Adorno and
Roberto L. Pagán
jannettet3000@yahoo.com
San Juan, Puerto Rico |
|
 |
Ekin Demiroren
September 25, 2006 |
Vedat and Muruvet Demiroren
vdemiroren@sisecam.com
Mersin,
Turkey |
|
 |
Miles Ferderber
August 6, 2003 |
Jean and Stephen Ferderber
vannmiles9903@yahoo.com
Toronto, Canada |
|
 |
Theodor Skeide
April 2, 2006 |
Oddveig and Kristian Skeide
oddveig@dragsund.com
Heroy, Norway |
|
 |
K'Joi Angel Avery
February 2, 2002 |
Kimmie Jeter
ka_jeter@yahoo.com
Fort Smith, Arkansas USA |
|
 |
Anakin Neff
September 27, 2005 |
Scott and Joanne Neff
superbi69@epix.net
Nanticoke Pennsylvania USA |
|
 |
Nicolás Ángel Eduardo
Siciliano Pino
August 1, 2006 |
Lorena Pino y Enzio
Siciliano
enzio.siciliano@gmail.com
Santiago, Chile |
|
 |
Metka Kogovšek |
metkasa25@gmail.com
Slovenia |
|
 |
Jolene Flores
April 22, 2002 |
Michael & Paula Flores
dosflores2@charter.net
Centerview, Missouri USA |
|
 |
Alejandro Penaco |
Federico B. Araniego Jr
(Godfather)
faraniegojr@yahoo.com
Ozamiz City, Philippines |
|
 |
Manning Conley
October 7, 2006 |
Bryan and Michelle Conley
micconley@hotmail.com
Dallas/Fort Worth, Texas USA |
|
 |
Madison Gage
March 17, 2006 |
Stacey Gage
s.babbitt@comcast.net
Brick, New Jersey USA |
|
 |
Alvaro J. Valdes
April 6 1977 |
ajavierdesign@yahoo.com
Sandy Point, Chile |
|
 |
Alex Matson
crouzon syndrome |
Paul and Gina Matson
matson@megavision.com |
|
 |
Khristian Joe Taff Godfrey
December 12, 2006
pfeiffer syndrome |
Amanda and Buddy Joe
Godfrey
korrynn12@yahoo.com
Arkansas City, Kansas USA |
|
 |
Cassie Harper
July 6, 2005 |
Kent and Christine Harper
harper7619@msn.com
Nampa, Idaho USA |
|
 |
Morgan Baldwin
April 25, 2004 |
Larry and Mishele Baldwin
jtbmom@hotmail.com
Los Angeles Clifornia USA
|
|
 |
Austin Cura
January 2, 1998 |
Martine Cura
Martineconn3@yahoo.com
Middlebury,
Connecticut, USA |
|
 |
Alfie Dewan
May 25, 2007 |
Shaun Dewan
shaun_dewan@hotmail.co.uk
United Kingdom |
|
 |
Samuel Christie
May 2, 2006 |
Paul and Robyn Christie
patandbob@xtra.co.nz
Hamilton, New Zealand |
|
 |
Shirley Wang
July 19, 1972
shirleykw@aol.com |
Margaret and Peter Wang
Los Angeles, California USA |
|
 |
Simon Reinders |
Peter and Petra Reinders
preinders@t-online.de
Germany |
|
 |
Büşra Arıkan
March 12, 2007 |
Resul and Rabia Arikan
tcmbresul@hotmail.com
Turkey/Malatya |
|
 |
Aiden Hobbs
April 18, 2005 |
Kathy and Jason Hobbs
jacks47@virginbroadband.com.au
Sydney, NSW, Australia |
|
 |
Anthony Medina
December 29, 2007 |
Melody and Joseph Medina
mellowjoy_26@yahoo.com
Makati, Philiipines |
|
 |
Shira Hox
July 13, 2003 |
Ayelet and
Amir Hox
ayelet1110@bezeqint.net
Ramat Beit Shemesh, Israel |
|
 |
Erin Austin
May 31, 1977 |
tough1tocrack@yahoo.com
Cranston, Rhode Island, USA |
|
 |
Anna Wojcik
August 14, 1976 |
wojanmag@poczta.onet.pl
Sosnowiec, Poland |
|
 |
Lia Burton
1988
Pfeiffer Syndrome |
Lia@redsurvival.org
California, USA |
|
 |
Oscar Antonio
August 7, 2008 |
Oscar Fabricio Loor and
Amparito Nicolalde
osfaloor@hotmail.com
Santo Domingo, Ecuador |
|
 |
Evelyn Ulrich
May 25, 1984 |
ulrichevelyn@yahoo.com
Chicago, Illinois USA |
|
 |
Cordell Meadows
May 23, 2008 |
Jimmie and Jennifer Meadows
Jennolynn01@aol.com
Huntington, West Virginia USA |
 |
Joey Guyette
August 11, 2007 |
Jessie and Tim Guyette
jessieguyette@hotmail.com
Eureka, California USA |
 |
Annabel Tammer
December 5, 2001
eriktammer@caiway.nl |
Alexandra van der Zee
az@omniversum.nl
The Hague, The Netherlands |
 |
Matt LaBerge
October 14, 2005 |
Selena LaBerge
sunflowerselena@rocketmail.com
Spring Hill, Tennessee USA |
 |
Ian Holstine
February 25, 2009 |
Michelle Weeks (Ian's Mimi)
nurseweekshell@aol.com
Birmingham, Alabama USA |
 |
Amanda Parr
April 2008 |
Monica and Kurt Parr
monical.parr@gmail.com
Aalesund, Norway |
|
How to get yourself or your child on this website
When I started surfing the internet, I just knew it would be
overflowing with information about Apert and related syndromes.
Well, as you know if you found this page by a search, that is not
the case... we can change that!
I would be happy to include you or your child as Teeter's friend,
but I will not do so without your express permission. Your right to
privacy is important to us. The presentation I can do for you can
be:
-
A simple mention with no email address
-
A mention with your email address
-
A text web page for you or your child - You write the story,
and I will convert it to HTML and post it as a link from
Teeter's Page
-
Same as above, but with picture(s) of your choice
We have scanning equipment and do not mind at all scanning your
photos for you. Send your pictures to me, I'll do the
scanning, and return your valuables to you safe and sound. Any of
you who want ANY pictures scanned, not just for the page, I'll be
happy to do that too!
Anyway, just write to us, and tell us what you would like
included. Text files should be written on a simple processing
program like Notepad which will allow you to save the file as plain
text, then just use your email program or browser to attach the file
to an email to me. I hope that we can make this a web site to be
really proud of!!! 
|
