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Olivia with her Sister, Mom, and Grandma
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The Doc says he may be able to fix it with a future surgery!
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| Olivia Marie Sanborn came into our lives and our hearts on December
23rd, 2002. Laurel's pregnancy was pretty normal with the exception of
borderline placenta previa early in the pregnancy. We had a test called a
"quad screen" done early in the pregnancy and were told that the baby was
high risk for Downs Syndrome because of the numbers that came back on the
blood tests. Much to our dismay, we had a amnio done that came back saying
that everything was "normal".....wrong!!! Anyway, throughout the rest of
the pregnancy Laurel had a "feeling" that something was wrong, but
everyone assured us that things on the ultrasound looked fine, except for
small head size (which they said could vary from child to child). Anyway,
thus we found out on Christmas Eve that Olivia had Pfeiffer Syndrome. It
wasn't picked up until a day after she was born and then it was probably
only picked up because she has broad toes and thumbs. She also had some
difficulty in breathing.
Olivia has had some challenges in the first year such as 12 days in the
hospital with RSV, intestinal malrotation surgery, and her first cranial
vault surgery.
As all of the children (and adults) on this board do, she amazes us
everyday with her strength, love, and zest for life. She has a big sister
named Amelia, who is almost 3, and a chocolate lab dog named Coco. We live
in Vermont (a nice state in the fall, but VERY cold and snowy in the
winter!).
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