|Hi, my name is Frans Wallenberg and I have Apert Syndrome.
I am 39 years old and I live in Sweden. I live not far from Stockholm (the
capital) its called Jakobsberg. I have lived there all my life. My
family are my father Egil, and mother Irma, and my two brothers Kenth and
Roland, and also my sister Birgitte.
When I was child, maybe 3-4 years old, I got my first surgery for my
fingers. I have 4 fingers on each hand, and my toes are stuck together. I
had a brain inflammation when I was 6 years old. I was in the hospital
much when i first began school from first to third grade. So when I
started from fourth to ninth grade i was in smaller classes. When I was
twenty I had my first surgery on my face. I have surgery four times on my
face. So that was the last surgery I had done.
I had some friends when was child. They took care of me when other
children bullied me. I had to take care of myself many times also. But
that is have been hard to grow up with Apert Syndrome. My friends and I
played much football and ice hockey when we were kids. My interests have
always been sports and sometimes old cars. My brothers had old cars when
they were young.
I was 18 I started working. I worked with Stockholm's symphonic
orchestra until six years ago. Then they closed the door for orchestra so
now I work at another concert hall in Stockholm. I have been a caretaker
all the time from first beginning. I like my job and friends on it. They
help me to come with Apert association here in Sweden to five years
ago. So they are my good friends.
That is great to meet new friends on Teeters listserv. I have learned
much during the two months I have been here. I hope I can give some ideá
what we do here in Sweden.