Hi! This is Laurie Bailey. I need to do some major updating
for you guys.
Jake's cranial surgery went really well. His surgery was on
a Tuesday and he came home on Saturday. We had some pretty intense swelling,
but all was well in about two weeks.
After his cranial surgery, we started working on the hands.
In January they inserted tissue expanders in the backs of Jake's hands. This
technology comes from breast reconstruction after a mastectomy. For about
three months we injected saline solution into a port on each of Jake's arms.
This saline filled the "balloons" to stretch the skin. When Jake's doctors
felt he had enough stretched they were ready to do the separation of the
thumb and little finger. This was the plan. But, as with anything else,
plans change. They decided to use all the skin for the thumb in order to
give Jacob the maximum webbing for flexibility. I'm glad they did. He left
hand/thumb healed very nicely. His right hand/thumb has some creepage of
scar tissue which can be fixed relatively easily. This separation took place
in April. We have been waiting all summer long for a repeat cranial surgery.
Jacob's previous surgery didn't close the way the doctor's expected. This
left about a silver dollar sized soft spot on the left side of his head.
Therefore, they want to go in and correct it before he accidentally falls
into something sharp that could puncture him.
It is now September and still no word on the repeat cranial.
Hopefully, it will be in October. Meanwhile, we are going to try and put
another set of tissue expanders in to continue with the hands. The doctor's
goal is to make all separations utilizing the tissue expansion technology.
If this procedure is available for any of you out there, I sincerely
recommend it because it reduces or eliminates the need for skin graphs which
we all know are very painful for the child.
Jacob is a typical toddler. He is a little behind on the
gross motor skills. He walks everywhere with the help of the walker, but we
are venturing out with a few steps on our own. He does really well also when
we are holding his hands. He jabbers a lot with "momma and dad" coming out
very clear. He has great recognition of the familiar things such as drink,
lights, ball, etc.
Well, as I have said before, I have a set of pictures that I
will be sending out very soon so everyone can see what Jake looks like.
That puts us up-to-date for now. Talk to you soon.