|My name is Tammy Baker. I have a baby whom we think has
Apert Syndrome. We are having a blood test soon to be sent to
Philadelphia and then we will know for sure. Anna Nicole Baker was born
April 1, 2000. She was 7lbs 11oz and 21 1/2 inches long. She was
delivered after only 3 hours of labor!
While I was pregnant I fell twice and I was sure I caused the
malformation, however, my midwife, Louise, assured me that it happened
very early and I wasn't to blame.
I also had an amnio done and thought it happened because of the long
needle. I felt so guilty and I felt so bad for her pain she has had to
endure already in her young life. My husband Mark was 41 and I was 36 at
the time of Anna's birth. It is said the gene could be messed up because
of an older father, but I do not think 41 is old.
I really don't know why this has happened, but God has a plan for our
whole family. i felt I should have trusted in Him and not have the amnio,
but Mark has a relative with Downs Syndrome, so he wanted me to have it
done so we could be prepared if our baby had Down Syndrome.
I had a great pregnancy except for the scary falls. I couldn't wait
to hold anna. I had an ultra sound done on my due date and it showed too
much fluid in the sac, so Louise and I decided we would have a
I don't know why they didn't see anything about her head in the ultra
sound. Anna had dropped early in my pregnancy, around 7 months.
She had some breathing problems at birth. One of her nostrils was
plugged and they had to give her oxygen. She had her first skull x-ray
on day 1.
Everyone in the hospital was so nice and no one treated Anna any different
or said anything about how unusual her looks were. They gave Mark and I
all the information for the Craniofacial Team.
In the next room was a woman who gave birth also, and she has another
child who was 3 who had the craniosynotosis operation at a year of age.
We have a mutual friend who introduced us right away. She showed me her
daughter and how she had been fine through everything. She helped me so
Mark was kind of stand offish because he didn't want to get too close
for fear she might die and he would not be able to handle that. She did
fine through her surgery on July 5, 2000. Anna was just 3 months old at
the time. She has at least 6 more surgeries to go, 1 more skull, orbital
bone advance, facial reconstruction, eye surgery, right hand syndactly,
friendulum clipped and she has a hernia. Anna's rib cage and breasts are
a bit off. On Anna's right hand, her middle and ring finger are fused
with another finger tip growing between the two fingers that are fused.
Cat, you can edit what I have written. My sister told me to write a
short story, however, that is hard to do. Mark and I have a blended
family with a total of 5 children. Jared is the oldest at 17 years,
Chris is 15 years, Katie is 14 years, Genesis is 2 1/2 and our Anna, 14
months. Thank you for adding Anna to your website. God Bless You!
6094 Laurel Drive
Paradise CA 95969
PS I will not have the internet after June 18, 2001.
All of the appointments are exhausting!