Quentin's Page

Quentin’s Story

My name is Quentin Zaengle and I am 14 years old. When my mom and dad were expecting me, they didn’t know I had Apert Syndrome. My mom had a few ultra-sounds because they thought my head looked different but the more ultra-sounds that were done; the more the doctors thought everything was ok. After being in labor for over 24 hours, my mom was told she needed to have a c-section. When I was born the OB/GYN that delivered me specialized in genetics and knew right away I had Apert Syndrome. I was born the night of March 1, 1993.

That night I was rushed to Children’s Hospital of Philadelphia where I spent two weeks being evaluated by a team of doctors. I had my first forehead advancement surgery when I was 5 months old. I had several surgeries on my hands when I was between one and two years old. When I was 1 1/2, I had a spinal fusion surgery because I had Kyphosis. I spent 9 months in a full body brace. I had many minor surgeries after that. My next forehead surgery was an emergency two weeks before Christmas when I was in 1st grade. Luckily, I came home Christmas Eve just in time for Christmas. My one and only mid-face surgery was the summer going in second grade where Dr. Bartlett inserted internal distracters and my parents turned them with a key. My parents took pictures of me every day since my profile changed with each turn. I’ve had surgeries after that but only minor ones.

I attended Gwyn Nor Elementary School where I was mainstreamed with all my classmates. I then went to middle school where I am mainstreamed for all the minors – my majors are taken in learning support. I have always liked school and I especially like middle school. When I graduate I want to go to college to be an historian. I like reading history facts about countries, kings and queens. I also like reading biographies and learning about people in history. When I am older, I want to travel to other countries.

In my spare time, I read a lot of history books and Google history dates. I really like to play computer games. I like to visit museums. I play soccer, baseball and I like to play kickball outside with the neighborhood kids. I am a Boy Scout. I recently earned my Tenderfoot rank. I also like camping with the Boy Scouts. I especially like to just be with my family and do fun things with my mom, dad and two sisters (Annalise is 13 and Lea is 10).


This page created January 7, 2001

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