At 3:16 am on October 28, 2002, Dustin
entered the world weighing 6 pound 7 pounces, not to small to me for
being five weeks early. I noticed that there was something wrong with
his fingers and toes. I was not paying attention to his forehead; my
first thought was that he looked like his father. The doctors could
not tell me anything, they took me to the recovery room and then to my
room where I spent eighteen hours crying my heart out, blaming myself
for this child’s problems. The doctors finally came into tell me that
they diagnosed Dustin with Aperts Syndrome and that he was meant to be
this way from conception. I could not care what else was wrong or what
needed to be done at this time I was just relieved that it was nothing I
did.
The next morning the specialist came into tell me that all of his
organs were fine and they were going to do a different scan on his brain
to make sure that was okay as well. They explain some of the different
operations that he would have to undergo as well as the several
operations that they would have to do on his skull to allow the brain to
grow.
I was released from the hospital nine days after Dustin was born due
to complications with my incision sight, they removed the staples too
soon and it sight opened up again. Rob finally got to come home for the
day to meet his son Nov.7 and Dustin was finally released November 19th.
It was so good to have my children under one roof again.
As the last two months have gone by we have become very knowledgeable
and informing other in our area seeing that Dustin is the first child to
be born in Victoria with Aperts Syndrome. We are very luck to have two
very beautiful children. And as you can tell Alyssa loves her baby
brother, Dustin, with all her heart just as much as we do.
Dustin’s first surgeries are not scheduled until he is almost nine
months old, so that will give us time to prepare and enjoy him.
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