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Ashley Marie Vella-Zarb was born May 13, 2003. After an uneventful
pregnancy and 2 ultrasounds which showed a normal healthy baby, it was a
shock when Ashley was born and wheeled away without me holding her. The
doctor came in and said she had a birth defect, but didn't know what it
was. Once she was transferred to the NICU, I was told that she has
Pfeiffer Syndrome with cloverleaf skull. At 2 and a half months, Ash had
her first cranial vault surgery. She's also had a shunt, feeding tube and
trach put in. She's also had stitches put in the corner of her eyes and
surgery to relieve pressure on her brainstem. So far she's had 7 surgeries
and many more to come. But I know she's a strong little girl and will pull
through it all. She's the light of my life and it doesn't matter how bad
of a day I'm having, all I need is to see her sweet smile and it brightens
my day.
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