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My Story
Hi. My name Is Michelle Robertson. I'm 24 with Apert syndrome. I was
born and raised in Milwaukee, Wisconsin.
I've had Apert all my life. I haven't figured out what was the reason
for my Apert but I heard that it could have been the age of my father or
it could be other reasons. I'm still researching that. I know how it feels
to be stared at, teased at, and laughed at. It hurts but I've learned over
the years to accept it and move on with my life. I've had many surgeries
my last one was in the year of 1999. I had jaw surgery done and I couldn't
eat regular foods for a while. I was supposed to go back for surgery on my
nose because I cant breath on the right side but I decided I had enough of
surgeries for a while I got tired of missing out on school and summer
vacation and I basically wanted my life back. I don't consider myself
disabled or special because I look different. I consider myself normal
because I feel normal, I act normal, and I basically look normal. I do
love special attention though:)
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I'm a married woman and I have a four year old daughter named Keleah. I
want to share an interesting story about her. When I first found out I was
pregnant I was scared because I wondered if my baby will have Apert. I
went through genetic counseling and a lot of sleepless nights worrying if
Keleah will be healthy. I was told that there's a 50/50 chance that she
would have Apert. So I went for an ultrasound and right there I could see
she had no Apert or no problems and I was happy. Keleah was my miracle.
She's the best thing that happened in my life and sometimes I wonder if
kids will make fun of her when she gets older because of how I look. I
will just tell her to ignore them and don't let them get to her.
More about me:
I love to read, write, surf the internet, spend time with family, and
watch movies.
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