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In May of 2003 my son, Mathias was born with Apert
syndrome. We did not know prior to his birth so it was kind of confusing
and scary when he was born. He is now 2 years old and one of the happiest
children I have ever known. He has had 3 surgeries so far, his first was
at 2 months to place a tracheotomy and tubes in both ears. The trach made
a tremendous difference in him. The next surgery was the craniosynostosis
repair at age 1. He did great and was able to come home after 5 days. The
third surgery was the first of his hand surgeries, this also went very
well and I have been very pleased with the results so far. We go next week
to start planning his next hand surgery and we are very anxious to have
them completed. |
Mathias' big sister, Emily
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Mom (Jamie) and Mathias
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Mathias loves to swing!
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This page was updated November 15, 2005 |