Hello we are the Baldwin Family from LA.,
California and our daughter Morgan Simone has Aperts. Two weeks
before she was born, on my normal weekly check up the nurse measured
my stomach and thought that I was overdue because my stomach was so
big. The nurse said that she had a bad feeling and made an
appointment for me to see a specialist that day. An hour later
sitting in the specialist office with my husband who rushed from his
job to the hospital when he got my call that there could be a
problem; we found out that there was something wrong with our baby
whom we knew at the time was girl. The doctor did not know what
exactly was wrong, but he did mention that something could be wrong
with her head, and we would just have to wait until she gets here to
see what the problem was.
Needless to say the two weeks before she came were
the most anxious two weeks of our lives. We wanted to maintain some
normalcy so we would not upset our son Justin who was two at the
time and very excited about the baby in mommies stomach. It was all
I could do to drop him off at daycare and say goodbye to him before
I cried all the way to work. I still could not believe what the
doctor said, but when I think back my stomach was really big, but I
just thought that was the way you carried a girl, I was just happy
that is was my stomach and not my but, which grew really large when
I was pregnant with my son.
Two weeks later my water broke and I went to the
hospital. I went into labor and everything seem to be going good,
which made me think that the doctor made a mistake. When her heart
rate dropped and the doctor said that I had a lot of amniotic fluid
I started getting worried again, but nothing prepared me for the
emergency caesarean and everything that followed.
When she came out I heard this loud, sassy scream
and I thought ok, the doctor did make a mistake, that cry came from
a strong healthy baby, I then heard the doctor say multiple
abnormalities and my heart broke into a million pieces. She was
rushed to the ICU, I did not even get a chance to see or hold my
beautiful baby girl. In the recovery room, I had a chance to see my
husband and my family who were all trying to be strong for me, but I
saw sadness in their eyes, which were all red from crying.
In my room were doctors, social workers,
counselors and who knows who else, trying to explain to me what was
going on with my daughter. Of course my husband and I thought it was
something we did, after reading and doing the research and accepting
that we did not do anything to cause this we moved on to doing
whatever we needed to do to make sure that our daughter received the
best medical care possible and that is what we have been doing.
Because I was extremely soar and to be honest, not
really knowing what I would see when I went to the ICU I just did
not go. When one of my friends commented on how beautiful she was, I
did not know what to say. When I mentioned to my friend that I was
scared to see her, she told me to stop feeling sorry for myself and
to get my but to the ICU and see my daughter. When I saw Morgan
lying there and saw her eyes and that little smirk of hers my heart
melted and mother and daughter joined forces. After that day, I was
at the ICU everyday. It broke my heart when I had to leave the
hospital without her, I would cry every night until she came home
and our family could be complete. The day she came home, we never
looked back, just forged a head with our new life with our new
beautiful baby girl.
Since her arrival, Morgan has had craniofacial
surgery, two hand surgeries and a surgery to repair her cleft
palate, which was the worst one because she stopped breathing and
had to be rushed to another hospital in an ambulance, but other than
that she is a champ who is loved by all who meet her. Morgan has a
wonderful pediatrician and a top rate craniofacial team. We could
not be happier with the medical attention we are receiving and with
how well she is doing and we continue to pray for her continued
progress.
Morgan goes to daycare where she has a lot of
friends and gets a lot of love (her grandparents spoil her to no
end). Justin, Morgan’s big brother loves her and is very protective
of his Morgan. Morgan is not walking yet but she has no problem
scooting around and walking is just right around the corner. So far
Morgan is a happy child and we can’t ask for more than that.
We know that Morgan has more surgeries to come and
we know that she will handle them like she has handled the rest,
with guts and strength that some adults don’t have.
I used to ask myself why did this happen to my
child, what did I do to cause this, now I don’t even care why or how
Morgan came to be just as long as she is with me and the rest of our
family that is all that matters and what is meant to be. This is
what I do know, I am totally in love with my daughter and she is
mine. Mine to take care of and love and help to grow into a strong,
smart and loving young lady and I gladly accept the challenge
because she is worth it. Morgan picked the right family to join, one
full of love, hope and courage, right now that is enough.
Please take care of yourselves and your families
and check in from time to time to see what a wonderful daughter my
husband and I have.
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